Shutting Down a Nation – What Chance Does a Child Have?

Dear Everyone,

Today our elected Republicans played Dirty. They wanted to eliminate funding for our new “Obamacare” healthcare program, so they refused to authorize funding for essential governmental functions because the two authorizations are together. It is an awesome show of power, a grand display of how ignorance can be used to hurt an entire nation, how personal self-aggrandizement and ego and raise itself up above an entire nation to seek fulfillment. It makes me sick at my stomach.

Our children are the most dependent of all. Their education depends upon funds from various governmental levels to be sufficient to pay for meeting their needs. For years IDEA has been clarifying what must be done to provide FAPE for our children with disabilities, and for all those same years, legislators with more ego than brains have been cutting funding until some school districts can offer only 4 days of school per week, students must share books and therefore can do only half the learning and homework. Parents do NOT agree with this level of funding or kind of educational services, but our legislators’ children usually attend private schools and they don’t have a clue what goes on in public schools. When parents vote, it is their prayer for appropriate education, but it is getting harder and harder to achieve that.

Today we see that there are elected representatives who represent only themselves and not their constituency. The reality is that they want what they want so badly they are willing to shoot an entire nation of people down the toilet rather than compromise. There probably is a word for that kind of person in the English language, but I am a Christian and I’ve never heard it. At least I’ve never heard a word that describes my shock and horror that anyone – or any group of people – would care so little about their fellow humans that they would treat us this way. I don’t have words to describe the depth of loathing, the despair for our future, the futility of belief their actions make me feel. It just doesn’t seem human to behave in such a manner.

Seeing that there are legislators who think nothing of actively working against what the nation needs, how do our children with disabilities stand a chance? How does an individual child stand a chance?

Nobody stands a chance unless we all SPEAK UP. We can’t afford to roll over and let it happen around us. It will take us down with it. Now we have to GET OUT OF THE HOUSE AND SPEAK UP.

WRITE AND CALL your representatives and senators and let them know you support them if they fought this shutdown and let the others know they can’t be so smug about getting your vote in the next election. I’m going to ask my Republican naysayers to give me the procedures for their impeachment. (They have to do it–or they won’t get my vote.) What are you going to ask your elected representatives and senators?

Call. Write. Join the efforts of your local groups that are protesting. Make some noise. What would happen if we all drew a bullseye on our foreheads to represent how they’ve shot us all down? What if we wore that bullseye until that funding is given?

Our public officials have publicly shown us they don’t care much about their public supporters, and it’s time we publicly show them we don’t care much for their public failure to do the job. It wouldn’t hurt to say it once for yourself and repeat it in your child’s name.

Advertisements

New School Year and Still No Reading Success?

Many school districts open for classes in August, and by mid-September, many teachers have started the new year’s instruction. For students with good memory, times have been good because much of the day was spent in review with only a little new material added. By the end of September, all the material will be new. Is your child’s IEP ready? Today’s example deals with reading and phonological awareness.

If your child is not reading properly but is not reversing letters or words in a dyslexic way, you might have heard the phrase “phonological deficits” during an IEP meeting or evaluation discussion. This phrase means a child is struggling to understand the meanings and patterns of spoken words and may find it too difficult to link poorly- understood sound to written symbols.

Trying harder is 100% an ineffective disaster strategy for these children. They are trying their best every time they look at print. If trying were the key, they’d be reading encyclopedias. These children need a kind of language therapy that has been incorporated into the Lindamood-Bell program and Fast ForWord program. These programs present sound information in ways that allow these students to develop the neurological pathways for interpreting sounds and learning to read. Children can sometimes gain years’ worth of skills in a matter of months. Some are able to exit special education when finished if reading was their only learning disability.

Lindamood-Bell and Fast ForWord are both expensive and school districts don’t provide them easily or upon request. When my child needed such therapy, it took an entire semester of meetings, letters, and finally an offer to write to Office for Civil Rights to get their opinion on the matter before our school district consented to try just 12 weeks. In that time, he gained 2 years of skills; today my son’s favorite activity is reading law and case histories–for fun.

Today, 10 years later, I attended an IEP as advocate for a child whose psychological evaluation report contained recommendations for Lindamood-Bell or Fast ForWord. Neither is in the IEP. Why? The school offers neither, and while there are discussions and/or negotiations underway to buy/use a similar program, the issue is not settled yet. Instead of a fully appropriate IEP, there is a request for the parent to allow the school time to see if the student can make progress with only being identified and placed as an SLD student. Staff asked the parent to wait until January “to see if”. That is half the school year! Is this adequate? It is not FAPE, surely.

It is “enough” because the parent is willing to wait and see. But not half the year. One month. That is time enough to see if behaviors are beginning to improve, if academics are starting to advance. If not, what is the remedy?

In cases like this, the school district has no choice. Its own evaluation report recommends one of these two programs or one like them. All are costly. A school district will only buy one of these if it is determined that there are enough students to benefit from it AND justify the expense. If there are no parents insisting that their child’s education requires this, a district can put off buying a program every year for years. Here is another fact: If a student must have one of these programs in order to learn, one of them must be provided. If FAPE cannot be provided without using some program to develop phonological awareness and skills, then such a program must be provided. Period.  The expense is justified by the child’s need.

There are at least 4 ways to provide for this need:

1. School district must buy a an appropriate program that remedies phonological deficits and provide it to students who need it. This takes time, especially if school speech pathologists and/or other staff must then be trained to teach the program.**

2. Transfer the student to a public school that has the program.

3. Transfer the student to a private school that has the program (and at district expense).

4. District arranges and pays for after-school services. (And pays for or provides transportation to and from if parents can’t.)

There will be a trial period before seeking to enforce this for today’s case because we truly don’t know if the change to special education will be enough to provide sufficient advancement and progress. We don’t really think it will take half a school year to know if progress is being made, but close monitoring will tell us what we need to know.

Parents, if a school evaluation makes a recommendation and then the district does nothing to address it, you should insist the appropriate service be provided by whatever means the school district can arrange. Your child’s access to an appropriate education is at stake. Go for it!

** If a decision has NOT been made to purchase and the district is just “shopping”, do not accept a recommendation to wait until there is a purchase because it may never happen. Also, if you are told it will be a semester or more before your child’s services could begin, don’t agree to wait that long, especially if your child is in a year of school in which a standardized test will mandate retention if your child’s scores are too low. A lifetime of being behind is too high a price for your child to pay just because the district doesn’t want to pay for individual services.